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Oats and Gluten-Intolerance: It’s Complicated

December 5, 2011 by Jeanne

Sigh.  You know when you really want a relationship to work and you spend so much time trying to get it to work?  And then you finally realize, “he’s just not that into you”?  That’s me and Oats.  I cannot tell you how much I wanted Oats to like me.  Truly.  It’s been years since I’ve been truly wooing Oats and to no avail.  It’s a bummer.  I hung out with Oats as a kid (In his guise of Instant Oats packets), I sometimes hung out with Oats as a non-gluten-free adult, and I’ve tried to hang out with gluten-free Oats as a diagnosed gluten-free adult.

And you know what?  Oats never worked out for me.  It’s been such a long and hard road for me and Oats.  Oats is his own man.  He likes who he likes.  And I jealously watch as he gets along with others of my type (gluten-free folks), and I get sad.  We talk, we argue, we make up, we try.  But no matter what, we don’t work together.  It’s not either of our faults.  Oats is just being himself.  I am just being myself.  And, as it turns out, we just don’t work together, Oats and I.

Oats hangs out with some of my other gluten-free friends.  They say he works really well in their recipes.  I tried so hard to get him to work for MY recipes.  But, it wasn’t meant to be.  We don’t work together.  I am anguished.  Oats still gets invited to gluten-free parties.  We meet at some of these.  We say an awkward, “hi,” and leave it at that.  Friends are confused.  “I thought you guys liked each other?” they say.  I say, “it’s awkward.”  I tell them, “he and I, well, we just can’t be together.  It’s complicated.”  My friends don’t understand.  So many of my gluten-free friends like Oats.  Why can’t I just like Oats?  Why am I being so difficult?

If you are gluten-intolerant, oats may be bad for you, too.  If you sometimes eat gluten-free oats and you feel bad, and you wonder, “hm, what did I eat that made me feel bad?” it could be oats.  It turns out that even though oats (the gluten-free ones) don’t have gluten, they do have proteins that might behave the same way as gluten on the body of sensitive individuals.  I spent so much time (years) trying to eat oats, but they always made me sick–and I never understood what was going on.  Then I read this article and ones like it, and it all made sense.  Read it for yourself and see if it might be you.

It turns out that folks who are sensitive like I am to the prolamin gliadin, which is found in wheat gluten, are also often sensititive to the prolamin in oats called avenin.  As it turns out, just as there is gluten-sensitive enteropathy (celiac disease), there is also avenin-sensitive enteropathy, which is a sensitivity to the gluten-like substance in oats.  Sigh.  What this means is that many of us gluten-intolerant folks are actually intolerant to oats themselves, not to them being cross-contaminated with wheat.  This is an area that hasn’t really been studied all that much.  But, the toxicity of oats for gluten intolerant individuals is recognized by certain countries, including Australia  and New Zealand.

EDIT as of 8/2021: I have begun to see articles arguing that since a sensitivity to avenin isn’t as widespread as the sensitivity to the other problem prolamins in wheat, rye, and barley, we should just ignore the people who are sensitive to oats as statistically irrelevant.  I strongly disagree with this philosophy.   In addition, there are more and more products and recipes that contain oats and oat flour in the US and the UK (because oats behave similarly to wheat in baking).  In essence, using oats and oat flour is a shortcut that drastically discounts the actual health needs of the gluten-free community.  Avenin prolamin sensitivity goes hand-in-hand with celiac and gluten sensitivity and is a health concern to all of us.

Now, I’m not a medical doctor.  And you shouldn’t listen to me without listening to your own body and speaking with your doctor.  But, it’s food for thought for those of us who are celiac and gluten-intolerant.

Sigh.


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Reader Interactions

Comments

  1. Belinda

    March 24, 2017 at 5:07 am

    Oats have always made me indigestion. Someone finally talked me into trying steel cut oats as I had only eaten quick cooking and regular oatmeal before. I was prepared to feel nauseous for a couple of hours. BUT nothing…no pain…no indigestion…no nausea.
    Also, this has nothing to do with oats, I knew that regular commercial peanut butter ( Jif, Skippy, etc…) would do the same thing to me; pain, nausea, indigestion. But then I tried an all organic peanut butter. The kind where the oil separates. No pain. No indigestion. No nausea.
    What do they add or do to these things during processing that makes me feel sick? Preservatives?

    • Jeanne

      March 24, 2017 at 11:34 am

      Belinda: Yeah, I have no idea about the steel cut vs. rolled oats difference. The peanut butter thing could be any of a number of things. The fact that organic doesn’t make you feel bad leads me to believe that you might be reacting to the pesticides. Also, commercial peanut butters contain things other than peanuts–additional non-peanut oil, sugar, etc. Also, when peanuts are stored incorrectly, they develop a mold that some people are very sensitive to. So, any of those things could be what you’re reacting to.

  2. Lindsey

    February 28, 2017 at 8:28 am

    As I research these digestive issues I have had for a couple years, and I run across information like this, things are finally starting to make sense! I have been intolerant to wheat, oats, and corn ( and corn is in everything- the lining of paper cups- who knew???) and have been tested for everything-and I am not a celiac or allergic to anything. But this, THIS all makes sense to me. Thanks for the info!

    • Jeanne

      March 1, 2017 at 9:44 pm

      Lindsey: I am so glad you found this post helpful. I recommend that you also read my Oral Allergy Syndrome post–you might find it helpful, as well.

  3. Anastasia

    September 6, 2016 at 4:37 am

    Wow, the beginning of the post is just splendid! It reflects exactly my relationship with oats. I hated them as a child. But as an adult I started to like them only to find out that I wouldn’t be loved in return.
    I really want to find more research about it. The thing is I am NOT gluten-intolerant. At least I don’t have a diagnosis and I feel fine after eating gluten bread except some light bloating. But it’s always worse with oats. I wonder if I am only avenin-sensitive.

    • Jeanne

      September 20, 2016 at 6:09 pm

      Anastasia: You can be sensitive to oats without being gluten-intolerant. It’s a grain–and folks can be sensitive to any grain. Hang in there!

  4. Chickpea

    May 27, 2016 at 1:09 am

    I have just found this post and it has made me realise that I am going to have to give up oats. I thought I was accidentally eating gluten, but no I can’t deny it anymore, it is the homemade flapjacks and muesli that is making me ill. Good-bye to another favourite food 🙁

    • Jeanne

      June 1, 2016 at 6:45 pm

      Chickpea: I’m so sorry. It’s such a drag. Stupid oats. Bleh.

  5. Ben Wallbank

    March 31, 2016 at 1:10 am

    I LOVE that people are still commenting on this.
    I’m a celiac, have been for 10 years, but I’ve been fine with oats (as a lot of GF people are), but now, someones flicked a switch in my body and alas, oats are bringing on gluten symtoms of sore eyes and fatigue (luckily no GI issues like wheat gives me!)

    So, reading your article, it may be the actual oats you’re saying rather than cross contamination……so GF oats will still potentially have the same effect?
    More importantly, this ‘protein/gene’ that upsets GF people……what OTHER food is it in other than wheat & oats?

    Thanks for your time on this! Great blog!

    • Jeanne

      April 12, 2016 at 11:11 am

      Ben: Yes, intolerances can be acquired over time. Which is so annoying. And yes, it is the oats themselves that are causing problem for many folks. If you get a chance, also read my post on Oral Allergy Syndrome. That is something that gets worse with time, as well. Also, I’m so glad you are enjoying my blog!

    • Hannah

      May 15, 2016 at 8:58 pm

      I guess being Coeliac in Australia is a lucky thing:) Oats are not considered GF here and anything labelled GF here cannot contain them. The Coeliac Assoc here notes that even without symptoms, the prolamin in oats may be causing damage to the bowel, therefore all Coeliacs are advised to avoid them. But it’s been ok to find enjoyable foods to replace the old gluten favourites, thanks to the generosity of bloggers like Jeanne:) Many many thanks!!

      • Jeanne

        May 23, 2016 at 11:12 am

        Hannah: Yes, I think you are very lucky in Australia! I run into so may people who react to oats but don’t realize it until I tell them about the prolamine thing. Sigh. And I am happy to help!

  6. Nicole

    March 15, 2016 at 9:26 pm

    I feel so sick right now because I ate oats this morning. I ate them every other day three times and each day I was sick with nausea and headache. I can’t eat oats. Bummer because I hear they help in cholesterol and weight loss. I am physically ill from the oats. I am waiting for it to pass. No more oats.

    • Jeanne

      March 16, 2016 at 11:41 am

      Nicole: I am so sorry you’re feeling sick. But I’m glad that you figured out the cause! And also, eating any one food isn’t going to magically lower your cholesterol or make you lose weight–so don’t worry too much about the fact that you can’t eat oats. Hang in there!

  7. Veronica

    June 2, 2015 at 5:32 pm

    Soak your oats over night before you eat them- it really helps!

    • Jeanne

      June 2, 2015 at 6:03 pm

      Veronica: I agree that soaking oats is nice to do–if you tolerate oats. If you react to the prolamine in oats, then no amount of soaking will help.

  8. tep

    April 13, 2015 at 2:20 am

    I love oats, or now , loved them. Within 10 minutes of eating them i get the symptons, but my wife in her knowing wisdom, knew that it was the oats, even through for a decade i denied and defended them. Now, reading back, historically, it seems that people did not eat oats with the all embracing eagergness that ‘gluten free marketing’ and healthy diet media would have us do now. To quote: “eaten by people in Scotland, but fit only for horses in England” Samuel johnson. I suspect that this wasn’t purely a snobbery on the part of the english. That, for some, oats are a difficult and awkward grain to digest, or avenin allergy; eroding the gut lining. There is a post war obsession with eating grains – pushing a low value crop that with minimal processing ends up on the shelves as a high value item. Makes it difficult to discern what is the right thing to eat, but as always it seems that the ‘right’ thing is the food that is hard won through research and self testing, or even through eclectic browsing; a little of this and a little of that. It just makes things real difficult when socialising and makes things expensive when shopping.

    • Jeanne

      April 16, 2015 at 7:53 pm

      tep: yeah, it’s a hassle no matter what.

    • leah

      April 24, 2015 at 7:53 am

      Thanks for that comment. It feels weird to thank somebody for their insights on oats, of all things, but I got something out of it 😉

  9. Cynthia

    October 28, 2014 at 10:58 am

    I am not a diagnosed celiac and can tolerate wheat pretty well but oats simply do me in. So glad to know I am not the only one out here. And my favorite cookie in the world???? You would know it is an oatmeal raisin cookie!

    • Jeanne

      November 11, 2014 at 1:13 pm

      Cynthia: Dang. The oat thing really is annoying.

      • Cynthia

        November 17, 2014 at 9:55 am

        Yes Jeanne it is. I have been told to eat oats to lower my cholesterol and I do really love a good bowl of hot oatmeal – but it definitely does NOT like me!

    • Tania

      March 20, 2015 at 4:23 pm

      I’m allergic to oats too, and was diagnosed with that allergy back in 2009, and like you, have had a love/hate relationship with them for many years. Being coeliac, they were my breakfast option until gf cereals started to arrive on the shelves, and I was eating the organic “safe” oats.

      In my early 20’s I was told I had rheumatoid arthritis, stripped oats out of my diet at 43 after an RA test came back negative and it’s never come back to haunt me… if only I’d known all those years earlier when I was encourage to eat oats more as they were “good for your liver”.

      • Jeanne

        March 21, 2015 at 11:53 am

        Tania: yay! I am so glad you figured that out!

    • Jill

      September 9, 2015 at 5:37 am

      My son has an oat allergy as well as a spinach one. The two biggest things we used to eat in our house. Since finding out and having to look for out for oat products I have been amazed how many unexpected things have oat products in them. Skin care products, most bake goods are mixed with oat flour, and most breakfast cereals. Then you go and pay way more for something that is supposed to be oat free just to find out it is mixed oat and wheat flour. Because it is not a common allergy everyone seems to cook with them and every no bake recipe seems to call for them. The joys of being a hyper vigilant parent because face and neck swelling is super scary. Now if I could find good substitutes for oats I would be happy.

      • Jeanne

        September 18, 2015 at 11:57 am

        Jill: I so know your pain! It really is frustrating. I have had success with raw quinoa flakes (the raw flakes, not the cooked flakes that are like cornflakes). Ancient Harvest makes them. They are smaller than oat flakes, but they work well. And I use them in cookies–in fact, I have a “Quinoa Flake Cookie” recipe in my new book (Gluten-Free Wish List) that is currently available for pre-order (see the link to the right).

  10. Teresa

    September 30, 2014 at 10:54 am

    I have been trying to figure out why oats affect me the way they do. I don’t have celiac, and I seem to tolerate wheat easier than I do oats. Ate them as a child just fine. I feel the same – tried them over and over and always same result. Had to end the relationship also.

    • Jeanne

      November 17, 2014 at 2:45 pm

      Teresa: Sigh.

  11. nafees

    August 19, 2014 at 4:29 am

    I write this as I laid up in bed. Was diagnosed with coeliac last July. I’ve had it tough (self pity) because I was having an on/off relationship in becoming gluten free. In December I collapsed and had a seizure at work. Had a CT which showed cysts on the brain. The seizures continued but when I had an MRI it was all clear thus the neurologist diagnosed me with psychogenic non epileptic seizures. During the 3 months I had off work I looked for alternative treatments as the anti epileptic drugs made me gain over 2 stones in 8 weeks. I had some acupuncture treatment. It was amazing. The acupuncturist looked at what foods I was having and suggested that the seizures may be related to contamination. I haven’t had a seizure for almost 3 months now. However this past week I have been indulging with different foods using gluten free oats. But by heck, I feel rough and today is the worst. Brain fog, disorientation and diarrhoea. And that’s when I Googled whether gluten free oats are really gluten free. Came across your article. What a fab read and unfortunately my love for oats as with everything else must now cone to an end 🙁

    • Jeanne

      August 19, 2014 at 12:20 pm

      Nafees: I’m so sorry! I hate that I can’t eat oats, also. Take care!

  12. Omar Marjan

    June 30, 2014 at 12:49 pm

    This is Hell for me, First the wheat now the Oats or specifically Maize that absolutely Kills me.

    It starts off with the itchtness then the brain fog and then the drowsiness.

    Nearlly all gluten free products such as bread alternatives ect all contain oats. Im dissapearing with there being nothing to eat that is gluten free oats free and diary free.

    did I mention I cannot eat cocoa beans neither. Any advice? 🙁

    Great article!

    • Jeanne

      July 2, 2014 at 5:14 pm

      Omar: I can totally relate. Sometimes it feels like I am allergic to All the Things. Check out my Gluten-Free Initial Diagnosis Survival Tips. They might be helpful. And hang in there!

    • Lynn

      February 20, 2017 at 6:22 pm

      I am gluten free, oat free, and dairy free…oh yeh…salt free and low sugar. I follow the Starch solution and with my limitations still works well. Lots of great foods in the plant world so I feel my food life is full of abundance.

      • Jeanne

        February 22, 2017 at 7:24 pm

        Lynn: Sounds good!

  13. Kristy K. James

    May 23, 2014 at 1:27 am

    My reaction to this post? Go make a bowl of instant GF oatmeal and see how I feel later today. And…hope like made I don’t react to them. I am not a classy eater. In fact, meatloaf is one of my very favorite meals, and until I tried oatmeal instead of crushed saltines, I was afraid I’d have to kiss it goodbye forever. If I have to give it up, I guess it’s back to the drawing board. :/

    • Jeanne

      May 23, 2014 at 10:06 am

      Kristy: If you do react to oats, check out quinoa flakes. I’ve been playing with them this past year and they are a decent substituted. Tinier than oats and a bit of a different taste, but good. I order Ancient Harvest ones from Amazon.

  14. Norris

    May 20, 2014 at 2:26 pm

    Jeanne, not only did you help me make sense of my “on again, off again” affair with oats, you did it in a very entertaining, wonderfully written way. Thanks.

    • Jeanne

      June 16, 2014 at 11:37 am

      Norris: You’re welcome!

  15. polishko

    April 14, 2014 at 12:45 am

    I’m almost gluten-free for 6-7 months now. I say almost, since I haven’t stopped eating out in a restaurant, though I am careful about the ingredients in the food I order, I surely cannot do anything about contamination. And I eat out at least once per week. Though not completely gluten free, my symptoms have improved grately. I am less often constipated, have no bloating and acid reflux, can get a better sleep, feel more energised, have improved menstrual period symptoms (less pain), have improvement in my memory skills. I didn’t go through any testing, especially genetic testing is not available in my country, but I have read that while celiac disease can be diagnosed by genetic testing, gluten sensitivity may not be. Nevertheless I don’t beleive I am celiac (yet), it seems that I can tolerate some gluten. For instance I eat stuf made from oats flour (non-GF, since these are also not available in my country) once in two months maybe, and I am ok with one or two cookies for example. But then if I overeat, I suddenly get constipated. I don’t get the bloating and acid reflux that I get with wheat, but still they are enogh to cause a disturbance. I have also realized that sometimes a specific type of food containing gluten (e.g. a soup eaten in a restaurant, containing tiny amounts of flour to make it thicken) does not cause a problem, while another time it triggers all the indigestion, bloating and acid reflux symptoms. I wonder if there is a critical concentration of gluten for me that causes the effect or is it a combination of gluten and something else. I have also found that gluten and alcohol consumed together, or strong alcoholic drinks containing gluten worsens everything fourfold for me.

    • Jeanne

      April 15, 2014 at 9:45 pm

      Polishko: Yes, it is confusing. I also react to a lot of things and am not sure whey I react to them some days and not others. I am thinking there is an inflammation question here. For me, the more things I eat that cause me to have inflammation, the more the inflammation builds up and the more I react to everything. I have found that alcohol is a major inflammatory for me–if I have a glass of wine with dinner a few nights in a row, I don’t feel well and I don’t react well to other foods. Sigh. It’s so confusing and hard to keep up with the intricacies of how everything works in our sensitive bodies.

  16. Jo

    January 30, 2014 at 12:02 am

    OK. I have spent the past few days wondering why I feel so dreadful – and wracking my brains as to whether I had let slip a speck of wheat. But a few days ago I discovered gluten free oats and have been loving my bowls of Porridge for breakfast. Now I remember feeling similar after gf oatcakes and cutting them out a year or two ago, but I wasn’t convinced it was them, as everyone seems to say gt oats are fine, and then I forgot. Bugger. I love porridge. But it is good to see that oat intolerance is a possibility and I am not just paranoid.

    • Jeanne

      January 30, 2014 at 10:21 am

      Jo: I’m glad this was helpful!

  17. monai

    January 6, 2014 at 4:38 pm

    Your medical doctor doesnt have clue about nutrition. The have only been trained on drug and how to manage symtoms.
    They shouldnt even advised patients about nutrition because tjey habent been trained on that, so they wont have the right information. The only person you need to ask are nutrition therapist or the naturopathic doctor.

  18. Kathy

    November 22, 2013 at 5:06 pm

    My son, sister and niece are all gluten and dairy intolerant. Their symptoms are bloating and abdominal pain. My sister is the most severe. The mystery is that they are now gradually becoming more and more sensitive to other foods that they were not previously sensitive to such as oats, corn, soy, pumpkin, kale, butternut squash, peanut butter, and peanuts. Has anyone else had similar problems?

    • Jeanne

      November 24, 2013 at 3:14 pm

      Kathy: unfortunately, it is very common for those of us with one food intolerance to develop more. I know I have many. Sigh. Some of the things you’ve listed are in the top allergens: corn, soy, peanuts. Kale is in the brassica family and brassicas can be hard on folks with digestive issues. All I can say to them is to hang in there and concentrate on the things that they CAN eat.

    • Lee

      October 20, 2014 at 7:23 pm

      Hi Kathy,
      the increase in digestive problems is most likely due to a damaged gut lining and imbalanced gut flora, initially caused by gluten and various toxins. The solution is to heal the gut by incorporating nutritious, non-inflammatory foods such as fermented foods and bone broth. Many people find after following a gut-healing diet for several months, they can add many other foods back in with no problems 🙂

  19. Jo

    November 5, 2013 at 7:36 pm

    Does anyone else get a burning (not heart burn, like the whole lining of the stomach) feeling in their stomach after eating oats? I have been gluten-free for almost 2 years (self diagnosed, my doctor suggested the elimination diet because he doesn’t believe blood tests work). I feel better, no bloating or joint pain, my eczema is under control, but I’m finding more allergies as I go :(. I am VERY allergic to millet (almost went to the hospital, I looked like I got hit in the face with a baseball bat), I have cut dairy back, and now I feel like this story. I ate wheat and oats my whole life (I’m 33) but have always had sinus issues, digestive troubles, and fought depression. I no longer have depression issues, my sinus troubles are mostly gone (except normal seasonal allergies), and my digestive issues are better… Until I eat oatmeal. I even tried gluten-free with flax seeds (I know I am okay with flax seeds), to no avail. I just bought some quinoa flakes, I hope it is a great hot breakfast .

    • Jeanne

      November 6, 2013 at 10:26 am

      Jo: I don’t get a burning but I get a stomach ache when I eat oats. Also, the older we get the more allergies we allergic-types seem to get. Sigh.

  20. elise

    June 10, 2013 at 12:58 pm

    I ‘ve had to cut out gluten free oats and I did like ground flaxseeds with them, but I dont know whether I could be intolerant to both, anyone out there got any idea?I’m like Jess-many hospital tests over 2 years for the docs to tell me nothing wrong with me-I’m too scared to eat sometimes

    • Jeanne

      June 11, 2013 at 12:21 pm

      Elise: You could be reacting to flax seeds. I don’t do will with flax seeds because they are pretty hard on my digestive system. They are a strong laxative and I don’t need anymore of that. Also, be aware the flax seeds go rancid fairly quickly–especially once they are ground. They should always be stored in the fridge or freezer. You might want to be sure you’re not eating rancid flax seeds–they will taste very bitter–before you determine that you don’t do well with flax seeds.

  21. Jenna

    May 7, 2013 at 11:29 pm

    Do any of you have the same symptoms when eating corn products? Apparently corn contains avenin too 🙁
    What the hell am I meant to eat for breakfast if I can’t have oats??????????

    • Jeanne

      May 8, 2013 at 8:28 am

      Jenna: As far as I know, the prolamin in corn is zein (and not avenin). That said, I would monitor how you feel when you eat corn. It’s one of the top 8 allergens and if it’s not organic, the corn products we have in the US are made from GMO corn (which is bad news). My daughter has tested sensitive to corn, so we have it very rarely. That said, I understand your frustration. It’s really hard to not be able to tolerate such common things. Sigh. You might want to try quinoa flakes in the place of oats and see how you like them.

      • Jerome Parness

        July 17, 2013 at 6:38 am

        FYI, there is no scientific evidence that GMO anything is bad for you. This is a philosophical argument, not a scientific one, irrespective of the press it has gotten from “green” groups and the acquiescence of the governement to the political pressure it has engendered. Again, there is no scientific evidence that any GMO crop is bad for you. If anyone says there is, let them post the SCIENTIFIC reference for critical evaluation, not political bloviation. Therefore, GMO corn is not known to be bad for you, and you can eat it if you have gluten intolerance and are not allergic to corn.

        • Jeanne

          July 17, 2013 at 11:16 am

          Jerome: Actually, that’s not true. There have been many independent studies pointing out GMO’s adverse effects on health. Up until recently, these have been conducted by independent researchers and have been mostly ignored. But just recently (June 2013), the results of a large, peer-reviewed, U.S. study on pigs (whose systems are close to that of humans) was announced that showed adverse effects GMO soy and corn feed had on their digestive and reproductive systems (which is what farmers had been reporting anecdotally for years). A write up of the study can be found here: http://www.centerforfoodsafety.org/press-releases/2291/new-peer-reviewed-study-on-gmo-pig-feed-reveals-adverse-effects.

  22. Tara

    April 10, 2013 at 12:52 pm

    Ahh…this could explain some things. I recently removed wheat from my diet (for reasons unrelated to wheat sensitivity) and suddenly discovered that my body felt much better without it! I kept it out for a few days and then went out with some friends and had wheat products and within a day or two the gut felt heavy (for lack of a better way to describe it) and my muscles felt bloated. So I’ve been exploring the gluten-free world and seeing what I like and don’t like, and have been making my own granola for breakfast (I can’t stand the taste and texture of oatmeal). But since I’ve been eating it I’ve been noticing the constipation coming back and general heavy feeling in the gut, though the muscles feel ok. Perhaps oats are no good for me as well?…which would be quite sad, because I really like the granola…

    • Jeanne

      April 11, 2013 at 10:46 am

      Tara: Bleh. I know–I love granola. But it’s nice to know what’s making me feel yucky!

  23. Michelle

    March 16, 2013 at 8:55 am

    I don’t have celiac or allergies but I’ve noticed when I eat oatmeal I feel hazy. I stopped adding milk and cinnamon a they are natural sedatives when served hot. But still happening with the oats. Hmmm

    • Jeanne

      March 16, 2013 at 2:53 pm

      Michelle: Yeah, that sounds like you’re sensitive to the avenin.

  24. Another Sharon

    February 27, 2013 at 10:49 pm

    Well, I am glad I found this page. I was recently diagnosed with celiac and doing everything gluten free. Over the last couple of weeks I have tried 3 different brands of gluten free granola cereals, always followed by a tummy ache. Me scratching my head trying to think of what I could’ve eaten that would be contaminated. Today, after a new granola cereal, and another tummy ache, and thinking what the 3 brands have in common, oats were it. So here I am trolling the net to see if I was bonkers, and I guess I am not. How sad, because, oatmeal chocolate chips cookies have been a favorite of mine. Thanks to all of you for sharing your stories, to know I am not alone in this.

    • Jeanne

      February 28, 2013 at 6:52 am

      (Another) Sharon: I’m glad to be of help–although I know what a drag it is to not be able to eat oats. Hang in there! Also, there is a product that can be substituted for oats–quinoa flakes. I used them years and years ago–I need to find them again and do some experimenting.

  25. sharon

    October 21, 2012 at 11:23 am

    many sites and researchers indicate theie belief that many persons may have an intolerance to most all grains as they contain lectins that cause problems in the intestinal tract. http://www.marksdailyapple.com/lectins/#axzz29xWUYaBf
    this may be more theory than science, but there are many individuals who do seem to be better off avoiding most grains.
    easier said than done? for sure!

    • admin

      October 21, 2012 at 12:48 pm

      Sharon: Yes, true about grains in general. But oats are in a particular category by themselves because of the prolamine avenin. The avenin is very close in structure to the prolamine in gluten–which makes is especially tough for many people who are gluten intolerant.

  26. Asia

    June 24, 2012 at 1:41 am

    I was sooo excited a few years ago when the market introduced “gluten free oats”. I bought some and baked some cookies. Mmm, they were amazing! …and then I immediately got really sick.

    Since then I’ve had a few unfortunate experiences where I’ve had a “gluten free” treat and gotten really sick, and then I’m informed that they had pure oats in them. I have other family members that are Celiac and they also can not have pure oats.

    In the city I live in there is a gluten free bakery that uses pure oats in a lot of their baked goods. It really bugs me because I’m obviously not alone—I’m not the only Celiac that can’t have pure oats.

    • admin

      June 25, 2012 at 10:01 am

      Asia: Yeah, I think many of us get sick on oats–but all of the information out there about “gluten-free” oats makes it hard to pinpoint that it is the oats that are making us sick. Sigh.

  27. Betty

    June 22, 2012 at 3:36 am

    I am so glad I found this. Now I know why my bloated abdomen, phlebitis in my lower legs, joint pains, grogginess and sleeplessness reappear when I eat oats and/or buckwheat. My GP thinks I am a hypochondriac internet nut, and that there is nothing wrong with me, but someone forgot to tell my body it is all make-believe. I even run a temperature after I eat that stuff, and the redness and swelling in my legs is not funny. Oh well. There are still so may things I CAN eat, and thoroughly enjoy. I’m off to experiment with sticky rice rolls made of brown rice, palm sugar and cold pressed virgin coconut oil! And those lentil salads are delish – as well as bean curries or homemade Thai pea soup in my favourite mug!

  28. B

    May 21, 2012 at 7:59 pm

    Thank you! Hopefully now I will stop trying them!

  29. Marcia

    February 15, 2012 at 5:37 pm

    I’m one who’s just happy to finally have a formal name for why my Dad and I avoid oats. In my attempts at research I began to wonder if it was unique between us as there was generally no information other than how oats get tainted with gluten in processing plants. I’ve generally been fine with wheat, but that bowl of oatmeal I had in college had me in pain for three days straight (I initially thought appendicitis until I told my dad). I miss them though. Everyone wants to be slightly healthy and they bring in oat stuff, and I run the other direction. Usually I say I’m allergic, or oat intolerant when I have time.

    • admin

      February 15, 2012 at 6:28 pm

      Marcia: It’s such a hassle, isn’t it? Sigh.

  30. Jess

    January 13, 2012 at 2:42 pm

    Julia,
    I can understand what you’re going through. I’ve been through so many tests because the doctors thought I had a gluten-intolerance. However, I have no problem eating wheat but get the same horrible digestive problems when I eat oats. It’s extremely frustrating because all the doctors tell me I’m not gluten-sensitive so I shouldn’t have problems with oats, but alas my body tells me otherwise. I just hope my oat-intolerance doesn’t create a gluten-intolerance in the future.

    • admin

      January 14, 2012 at 4:57 pm

      Jess: I have to say, I don’t know anything about how the two intolerances are connected. But, yes–I agree–it would be great if you didn’t develop a gluten-intolerance!

  31. Julia

    December 17, 2011 at 9:20 pm

    I am learning quite a bit about my years of difficulty with oats. I have no problem with wheat, but oats always make me react like you guys react to gluten. It is hard to get people to take me seriously because the separate reaction to oats is just now being understood.

  32. InTolerant Chef

    December 11, 2011 at 5:15 am

    Oats don,t deal well with me either 🙁 I miss them too…

    • admin

      December 11, 2011 at 10:42 am

      Sigh.

  33. Nikki

    December 8, 2011 at 11:28 am

    I, too have the same problems with oats. I’m also intolerant to gluten and oats, as well as buckwheat. Buckwheat also gets invited to gluten-free parties, but we do not get along. It’s sad, really, because I love oatmeal, oatmeal cookies, everything oat. And buckwheat-yummy buckwheat pancakes, and all those gluten-free cookies made with buckwheat, too. Oh, well. Life goes on and you get creative.

    • admin

      December 8, 2011 at 1:32 pm

      Nikki: you know, one of my other readers was talking about not tolerating buckwheat. She and I thought it was because she couldn’t find gf buckwheat (i.e., not potentially cross contaminated). Hm. Now I’m wondering about buckwheat. Although it is a seed and not a grain. Interesting.

  34. Noor

    December 6, 2011 at 5:14 am

    I always thought I must be doing something wrong. For years I used to have awful tummy aches and washroom problems, but chalked it off to cross contamination. For the past six months I’ve tried to reintroduce GF oats into my diet, and have failed miserably. Ah, to enjoy a nice bowl of oats in the morning again, alas the pain and suffering is not worth it in the end.

    • admin

      December 6, 2011 at 6:59 am

      Noor: I know. It’s so sad. Bleh.

  35. Becca Knox

    December 5, 2011 at 6:08 pm

    Ah, Oats, he is a fickle lover. I have done the same dance with him. Overjoyed to be able to invite him back into my life, I cried with nostalgia and delight the day I made mazurkas again after a dozen years or more without. I reveled in his creamy steel-cut goodness for breakfast. I made the best apple-cranberry crisps ever. And yet, I was betrayed. Guts wrenchedand mind foggy, I had to admit Oats and I are not compatible and again he is banished from my kitchen. I share your disappointment, Jeanne. Sigh.

    • admin

      December 5, 2011 at 7:23 pm

      Becca: Sigh. It’s so sad, isn’t it?

Trackbacks

  1. Gluten-Free Initial Diagnosis Survival Sheet says:
    February 24, 2012 at 4:11 pm

    […] is oats.  It turns out that many of us react to them (even the gluten-free ones).  Check out my post about oats if you think this might be […]

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All Recipes In Alphabetical Order

My recipes, alphabetical order

Angel Sugar Cookies

Animal Crackers

2 Apple Pie Fillings

Baguettes

Banana Bread

Banana Oatmeal Muffins

Bear’s Ginger Oat Muffins

Berry Cake

Best Blueberry Muffins

Bittersweet Mocha Coffee Cake

Blackberry Cobbler

Blueberry Crumb Bars

Blueberry Honey Muffins

Blueberry-Lime Coffee Cake

Blueberry Snack Cake

Bread, Sandwich, Multi-Grain

Bread, Sandwich, Soft

Bread, Sourdough (boule–round loaf)
–Sourdough Starter

Brown Butter Pound Cake

Brownies

Brownies, Bittersweet

Brownie Bark

Butter Cookies (Spritz, Pressed)

Buttermilk Biscuits

Chantilly Meringuée (or Elegant Ice Cream)

Cheese Crackers and Straws

Cheese Straws (made with gluten-free Puff Pastry)

Cherry Pie

Chocolate Almond Cake

Chocolate Bouchons

(Decadent) Chocolate Cake

Chocolate Chip Meringue Cookies (dairy-free)

Chocolate Chip Cookies and Chocolate Chunk Cookies, 2 Recipes

Chocolate Chip Cookies, Shortbread-type (egg-free)

Chocolate Chip Meringue Cookies

Chocolate Chip Scones

Chocolate Chocolate Chip Biscotti

Chocolate Clementine (orange) Cake

Chocolate Dump (It) Cake

Chocolate Pecan (Tar Heel) Pie

Chocolate Pound Cake

Chocolate Sheet Cake (w/Chocolate Pecan Frosting)

Cinnamon Rolls, with or w/o Cream Cheese Frosting

Cinnamon Swirl Sour Cream Coffee Cake

Coffee Chocolate Almond Crunch Bars (egg-free)

Cornbread

Cranberry Cake

Cranberry Sauce

Crazy Cake (dairy-free and egg free)–w/instructions for cupcakes, too

Cream Cheese Pound Cake

Cream Cheese Truffle Brownie Cookies

Cream Scones

Crullers (donuts) (with a selection of glazes)

Cupcakes (chocolate), use the Fast, Easy, and Elegant Fudge Cake recipe and bake for 30 mins. or the Crazy Cake recipe for a vegan alternative

Decadent Chocolate Cake

Dilly Cottage Cheese Bread

Dinner Rolls (yeasted)–like Parker House Rolls

Doughnuts (cake-style), 2 Recipes (Plain + Pumpkin)

Fast, Easy, and Elegant Fudge Cake

Flour Mix (Jeanne’s Gluten-Free All-Purpose Flour Mix)

Flour, Self Rising

French Breakfast Muffins

Fruit Drop Cookies

Fruitcake–aka, Country Christmas Cake (the best fruicake you will ever eat!)

Fudge

Garlic Truffle Oil Popcorn

Ginger Molasses Cookies

Gingerbread Cake with Persimmon

Graham Crackers

Hamburger Buns

Honey Vanilla Pound Cake

Ho Hos

Hot Cross Buns, Traditional

Hot Cross Buns, Apple Cinnamon

Irish Soda Bread

Italian Chocolate Kiss Cookies (Baci di Cioccolato)–chocolate-almond cookies w/chocolate filling

Jam-Filled Butter Cookies–Thumbprint cookies

Jam-Filled Shortbread Cookies (nut-free Linzer cookies)

Kentucky Bourbon Cake

King Cake

Krumkake (Scandinavian Crisp Cookies)

Lemon Sour Cream Pound Cake

Lemon Buttermilk Snack Cake

Lentil-Tomato Pasta Sauce

Linzer Cookie, Giant (nut-free)

Little Tiered Chocolate Cakes

Madeleines (Classic)

Maple Bundt Cake

Marbled Coffee Cake (Viennese-style)–chocolate swirl in a lemon cake

Matzo

Mocha Bundt Cake

Nanaimo Bars

Nut and Jam Snack Bars

Orange and Poppy Seed Quick Bread

Oatmeal Cookies, Salty (like the Teaism cookies)

Oreos

Pan Gravy, Classic

Pancakes

Pancakes and Waffles, Sourdough

Pasta (Homemade)

Pasta with Brussels Sprouts, Chili, and Bacon

Peach Cake

Pepparkakkor (Swedish Gingersnaps)

Pie Crust, Flaky

Pie Crust Crackers

Pistachio Cookies with White Chocolate Ganache

Pizza Crust (NYC thin-style)

Pizza, Grilled

Pound Cake

Puff Pastry

Puff Pastry Cheese Straws

Puff Pastry Shells (Vols au Vent)

Puff Pastry Turnovers

Pumpkin Chocolate Chip Cake

Pumpkin Spice Bundt Cake

Pumpkin Pie (with directions on how to adapt to dairy-free)

Ranch Dressing

Ricotta Pound Cake

Risotto (Easy, cooked in Pressure Cooker)

Rosettes (light and delicate Scandinavian fried cookies)

Salmon (or Halibut) Croquettes w/ Spicy Remoulade Sauce

Salty Oat Cookies–like the Teaism cookies

Shortbread Cookies (w/Oat Flour and Ginger)

Shortcake Biscuits (including recipe for Strawberry Shortcake)

Skordalia (Greek potato-garlic-lemon dip)

S’more Whoopie Pies

Soup with Beans, Turkey, Potatoes, Basil and Cumin

Sour Cream Bundt Cake

Sour Cream Orange Coffee Cake

Sourdough Bread (boule–round loaf)
–Sourdough Starter

Strawberry Cake

Strawberry (or Raspberry) Mascarpone Tart with Pecan Shortbread Crust

Streuselkuchen (yeasted German Crumb Cake)

Tar Heel (Chocolate Pecan) Pie

Texas Sheet Cake

Thin Mint Cookies (like the Girl Scout cookies of the same name)

Toaster (or Portable) Tarts–like Pop Tarts

Tortillas (Flour)

Tres Leches Cake

Tunnel of Fudge CAke

Turkey Meatloaf

Victoria Sponge Cake (Jam-Filled)

Vols au Vent (Puff Pastry Shells)

Waffles (Buttermilk)

Waffles (Sourdough)

Whipped Cream Cake

Zucchini Bread (with or w/o chocolate chips)

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